Suffering With Morgellons

by Debbie
(Phoenix, AZ, USA)

My hair with dye in it

My hair with dye in it

I have been suffering with Morgellons, because there cannot be any other word to describe it, on and off for about 3 years now.

The first time I noticed "them" I literally went crazy. I mean LITERALLY to the point where I felt like my husband wasn't my husband and my kids weren't my kids.

I ended up 'restin' in a psych ward for a week and was put on Xyprexa which actually made the whole thing go away. Until now.

My husband gave me roses and as I was throwing them away because they had died a petal fell into the toilet. What I saw then really scared me. The water was calm but this thing began zipping from one side to the other and spinning in circles!! I threw another petal in and it did the same thing! Now I am so scared of every thing that I eat, wear, drink etc.

I have cut the seams out of jeans and watched them do the same thing. A piece of food did it as well. The scariest part of this whole thing is that there is nothing I can take this time to make it go away.

I have seen it, my son has seen it, and my 'make any excuse he can for what he see's' husband has witnessed the swimming as well. I want so much to be crazy again and I know how weird that sounds.

My 16 year old son with Aspergers Syndrome just had to have a granuloma removed from his scapula on his shoulder. Why did he
get it? It is one of those things that they have no explanation for. At first they thought he had cancer but, thank the Lord it was not.

He is covered in acne....or could it be a rash like I have read can occur from these things.

I have seen the tangles of thread under a microscope and, although I can't see a bug per se, I can see antenna sticking out of it. I am losing my hair in chunks.

I think the worst thing is that I am so alone. I work for Apple from my bedroom so I never really leave here. My husband is so distant that I can't speak to him about any of this. I have no friends I can confide in. At least I have found this board to vent to. Thank you for having it and thanks so very much for listening.


Hi Debbie,

So sorry to hear of all of your suffering with Morgellons as well as all that you are going through with your son, etc. I can only imagine how disheartening this can all be.

Sadly, it could be the stress of the situation that is causing your hair loss, rather than suffering from Morgellons itself.

I'm glad that having a place like this where you can tell your story and confer with others is a help to you in some way.

I hope and pray that you find some of the suggestions here are a help to you and that you may find healing and peace soon.


Comments for Suffering With Morgellons

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Jul 06, 2022
god bless
by: keith

So sorry to hear you're going through that, I have all the same symptoms and more for going on five years now. I feel that I am at end of life stage on this with the thousands I've spent on equipment and research the only thing I have concluded by deduction is cercaria parasite. They're visible with microscope and cause of the rash all over my body and now lost all my hair. Keep you in prayers hope this helped for someone else.
Ps. I hate them things that swim in the toilet and bath also. You're not alone

May 09, 2021
I need help and no one is there
by: Alanda

I don't know what is going on with me it started in June we was told to stay at home. I had long hair and now I have less then 2 inches I lost so much weight and parts of my body I have unknown particles coming out of my body. I have been to different Doctors just to be labeled this is very depressing I don't want to go out side due to the sores on my body and I don't want to go to another Doctor do to the embarrassment that I have already experienced if someone can help please send me your email or contact info I thank you in advance

Jun 29, 2018
Parasite Cleansing Protocol
by: Angie from

Dear Kelly,
I am so sorry to hear of all that you have been going through. It sounds so overwhelming and horrific for you.

Is there any way that you can try the parasite cleansing protocol that is outlined for those wanting an aggressive cleansing and building program to get the best results? If you are able, that is my best suggestion for you.

With prayers for your improvement,

Jun 29, 2018
by: Kelly

I have suffered with this illness for most 7 years... And progressively only gets worse.. I started with a sore near my mouth... Almost a year before it healed.... went to the doctor several times was tested for everything all my blood work came back normal no infection said there was nothing wrong with me that I had a staph infection although I had no sign of infection and any of my lab work okay then I began getting lots of these little sores in my nose like six or seven at one time so painful then I saw all of these find transparent hairs growing all over my body I actually grow a full thick mustache overnight totally freak me out then I had about five or six lymph nodes under both of my arms swell up streamly painful nobody could explain that to me either then I begin to not be able to pull words like I used to I mean I could just talk and say exactly what I was trying to say then it became where I just had to dig and dig and dig into my brain to figure out what it is I was trying to say like if I guess what they would call brain fog then my eyelashes and eyebrows became transparent like hairs the hairs on my arms became very wiry I've lost all elasticity in my skin especially in my face honestly felt like I had glass in my face I actually pulled a knot in a string out of my cheek everyone thought I was crazy my hair got to the point where it was coming out in clumps it would not lather no matter how much shampoo I put in it and then it began becoming long thick transparent hair instead of my normal hair my Vision has a increasingly declined everything's always blurry I have recently began developing problems trying to urinate was treated for a UTI with Cipro absolutely did nothing for me I have seen cotton like fibers in my stool I've dealt with a sores off and on throughout all the years I have severe scars and crates in my face they tried to tell me was self-inflicted or I was delusional and I'll be honest I dated a guy who tried to tell me that he was having all of these symptoms and I did I honestly thought the man was a nut that he was seeing stuff and he was delusional now I know what he was going through now that I have experienced it myself I have severe depression problems sleeping I believe it's some sort of fungus the only thing that my lesions reacts to are fungal creams but it just comes right back and seconds I have seen patches of like fiber optics in my face just in like clusters nobody can explain that to me you know one thing I can always say I've had and that's my sanity and with all the suffering and doctors I have been through I'm starting to wonder am I crazy I just can't find that believable if anybody out there knows a doctor and Birmingham Alabama or near Alabama that can treat this for me please please give me the information I also have had a the stuff in my ears I don't hear very well anymore my mouth stays continuously dry my lips are always dry it's just a downright miserable feeling also have severe joint pain stiffness especially in my neck whenever Malaysians played when I take tissue to soak up the blood there are fibers in the blood as well as in my urine and my stool and nobody can help me I'm desperate please provide me with any information but you may have and I will do the same for you thank you for letting me tell this to somebody who doesn't think I'm a nutcase

Feb 28, 2016
by: tracieb

Please feel free to contact me. We will help uncover this mess.

Feb 28, 2016
From Phoenix also
by: Nichole

Hi Debbie,
I live in the Phoenix area as well and have been dealing with this nightmare for 1 1/2 years as well. Im trying to find others that live in the area I can talk with and possible meet up, compare notes etc. I think I might have figured something out that could be huge or it could be just an isolated deal with me, and don't want to say too much until I talk with a few people to see if we can uncover something about this stuff since doctors are no help at all and wont even listen let alone look at you like "your crazy" that would drive anyone insane!

P.s. your hair falling out absolutely has to do with this disease, I would love to talk with you


Sep 26, 2014
debbie= it cant be anything else BUT morgellons!!
by: tracieb

Hey debbie. Our stories sound so much alike. Look, we do and most people do have morgellons. It may not effect some like it does us. This is evil greed! And no medical doctor has or can help. They all say yes its something but we are unable to identify what the 'small insect' is. I also sent my hair samples to a forensic analysis company. Their findings were 'this is the most bizarre thing I have ever seen, our bodies do not produce this kind of stuff'. Refered me to UAB kirklin clinic b'ham al. Laughable. They ALL say yes its something but we dont know what....!!!? Told me it would not offend her if I wanted to go to the Mayo clinic in Jxnville Fl. Shes had other patients to go there to get help. Ive spent thousands of $$ on trying to get a true diagnosis and treatment plan. I cut all trees down in my yard. Threw all clothing away. All furniture away. Just about everyrhing I own has been tossed. This has efdected my entire life. Myself. My family and friends. My Boutique business. My everything. Im scared to touch anything. Ive lost over 15 inches of hair in less than a year (NOT NERVES)!!! WHAT DO I DO? WHAT DO WE DO??? GOOD GRIEF PEOPLE!!!

Jun 19, 2012
Itching after NC beach vacation
by: Angie

Dear Christa,

At first your symptoms sounded like you may have been having a strong reaction to sand flea bites (or noseeums), but if this occurred last year and you are still having problems with it, that's probably not the case.

You may have picked up some type of bacteria or virus in the ocean (or on the beach) and it is in your system and just doesn't want to leave.

I remember several years ago that my brother-in-law was swimming at a North Carolina beach and something bit/stung his leg and he ended up having severe pain, vomiting, etc., off an on for several months afterward.

Since the doctors can't seem to help you, I would strongly suggest that you do what you can to help yourself by giving your body a good clean out from the inside using Herbal Fiberblend or another top quality herbal cleanse.

You also need to build up your immune system so that it can fight off whatever is in your system giving you this grief. Probiotics, essential fatty acids, and really good nutritional support is very important.

In your case, you'd probably find the Daily Essentials Pack to be the most effective (giving you the most bang for your buck) as it can help you cleanse and build at the same time.

Be encouraged that there IS hope if you aggressively cleanse and build. Keep us posted on your progress.


Jun 19, 2012
by: Christa

I whent to the beach in NC. last year. When I got back home, I started to itch and got sores all over my body. It got better at times. but now my back, face, and legs are hurting and feel like I got something growling all oner . Gmakes me sick and I start to womit.I've been to one DR after anther and nobody can find anything wrong, because it does not show up in blood tests or x-rays. This stuff is driving me crazy and don't know how much longer I can deal with it.

Jun 09, 2012
To Debbie from Phoenix
by: Danielle

Hello Debbie.

I hope your better.

I came across an article on Demodex Hair Mites with included this amazingly easy recipe to kill them and, since like me you have nothing to loose, (I already have and still losing my gorgeous curly hair and half poisoned myself) you might want to try it.
I did today and....Oh My God!!!! at the moment it's seems to be working.
These are the best, with just about no crawling on my head or skin, last two hours I have lived in a long long time.

The recipe is: 3 cups of Water
1 cup of Peroxide
3 tbs of Borax and mix well.

Spray this magic potion on you hair and skin.
You probably will go thru a period of "THEM" fighting the mixture before the calm (heaven).

It also mentions to kill the eggs, 10 crush cloves mixed with a bit of water to drink three times a day. It tastes very bad so I figure I'll try the spray first.

Give this a try and good luck.


Jun 06, 2012
To Debbie from Phoenix
by: Danielle

Me again...Danielle.

I also believe we have "Demodex Hair Mites".
I need to know this: do you feel your face getting bitten or crawled on, ears, nose, sometimes in you mouth and getting marks (pimples) from it?
Do they walk on your scalp, fall on you skin and bite? Most of the time two holes...entry and nest where they lay eggs I of life...????

Jun 06, 2012
To Debbie from Phoenix
by: Danielle

I can`t see what`s in you hair from the photo but I got itchy just looking at it and... "I KNOW"...!

For some relief : For hair: Tea Tree Shampoo with Tea Tree Oil added to it, every day if not sometimes twice a day (before going to bed or you know when they come out)
Skin: cream and/or lotion mix with 5 or 6 or 7 or infinity drops of tea tree oil so skin will absorbed the oil better. For some relief...

It takes a least two weeks to see some improvement. I did. Hope you do also!

I haven't yet tried "Dog's Fleas, Ticks and Lice Shampoo" but did buy some today.

To be continued...I so hope not...


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